Dear Amir
I feel better physically and mentally
than I have for about 12 years, which is a huge
relief.
I no longer wonder if I will be well
enough to undertake anything - I just assume that
I will be, which means that I can fill my days and
plan ahead, and which is of course very liberating.
I bike most days for at least half
an hour, and enjoy the freedom and stress-free pleasure
of walking rather than driving. In addition, I try
to walk for at least half an hour most days - not
that I particularly enjoy it, but I do feel very
virtuous afterwards. I am starting to lose weight,
which is of course very satisfying.
I now find that I have an additional
4 hours at least to my day - which means that I
have been able to get on with all the projects which
have been haunting me for a long time and which
I never felt up to doing, such as sorting through
10 plus years of photos and putting in albums, clearing
out cupboards, re-arranging my home office, organising
a new computer (badly needed), - all quite boring
but the reward is a feel-good factor - and more
on the plus side, making social arrangements without
the anxiety of maybe having to cancel, catching
up with friends, going to the cinema, escaping into
a good book, planning holidays, etc.
I also now find that I don't have
to rest up the day before I do my weekly babysitting
for two of my grandchildren. The following day I
can undertake my usual full day of activities, without
any fear of not being able to cope. It no longer
crosses my mind that I won't be up to doing something
- I just assume that I will.
I no longer spend a lot of my time
calculating how much rest I have had or will need
to have, in order to avoid getting over- tired.
The strange thing is that now I am no longer focusing
all the time on my symptoms, I find it hard to realise
when I am tired, and sometimes have trouble in persuading
myself that I really ought to go to bed!
My husband is having to get used to
my being up and about in the evenings and often
going to bed after him, so he can no longer hog
the TV and the phone as he had become accustomed
to, which has not happened for about 12 years.
As a result of all of the above, and
particularly because I no longer feel constantly
anxious about whether or not I will have the energy
to commit to a particular task, I am altogether
much more relaxed and focused, and able to enjoy
life in the moment.
I also find that I am no longer worried
about forgetting something, not being as sharp-witted
as I would like, etc. or generally not being up
to par mentally; I just feel confident the way I
am, and take the attitude that if I do mess up,
well don't we all from time to time.
As I put in my earlier email, I don't
feel I have to strive for perfection any more. I
can't really tell you why, except that you had warned
us not to!
I suppose you could say that generally
my confidence has greatly increased and certainly
my family and friends have noticed a change in me.
Fortunately, I don't appear to have become intolerant
or impatient, which is what I had feared would happen
once the blandness and passiveness caused by the
constant mental and physical exhaustion of ME had
passed!
Of course, there have been a few times
when I have had a "wobbly" day for whatever
reason, and I would describe it as a momentary loss
of confidence. Then I have remembered your advice
and just gone back to the exercises as often as
required, which have re-focused me and put me back
where I want to be.
Once again, I am so happy and relieved
to be well again, and spread the good news of the
training whenever I can. I hope the above is useful,
and although it all sounds very mundane, it is an
enormous improvement on the quality of life which
I had before I came to Llansteffan.
With very best wishes,