After learning how to overcome
M.E with Amir, I am now 100% better. Just to give you some background
of how I was before I met him...
In February 2004 I was diagnosed with M.E. I was frequently bedbound
from Feb 04 (1 and a half years) and when I wasn't bedbound I was house
and wheelchair bound mostly. I could walk a little around the house
though not far at all, but in August 05 to late January 06 I had a
severe relapse and was fully bed bound.
I was very sensitive to light and sound, I had blackout blinds on the
windows and sunglasses or eye mask throughout the day, and I could not
stand the rustle of a paper bag or someone talking!
I had nurses come to home 3 times a day to turn me over when I was in
paralyses (where I couldn't move from the neck downwards, and at one
point this continued for several days). I couldn't walk during the 6
months that I was in bed because I was so ill and because most of the
time I couldn't move.
There were times when I couldn't talk. I had to write on a piece of
paper what I wanted to say or try to use expressions using my arms and
face, although when I couldn't move this proved impossible.
In October I was rushed into hospital as an emergency case. I had lost
2 stones in weight and wasn't eating or drinking because I couldn't
open my mouth, chew or swallow. I was put on i.v fluids through my arm.
I was advised many times by doctors that I could be put on an ng tube
to feed me, but thankfully I wasn't.
I was unconscious a lot of the time I was in bed and had seizures too.
I was also very hard to wake up in the morning and it used to take me
about 4 hours+ sometimes to get to sleep.
But thankfully that was my old life, after months and years of being so
ill, I went for to see Amir for help.
This is my journey of recovery...
Day 1 -
I arrived in Wales. I was paralysed from the waist downwards (had been
for 19 days). I felt awful. I was carried in and put straight in to
bed. I felt so sick, was violently tremouring, was going in and out of
whole body paralysis, and had bad temperature control and headaches.
This was all night, and I couldn't sit, or even get in wheelchair to
toilet. I couldn't lift a cup or a lightweight magazine. I could hardly
open my eyes, eat or drink. (See picture below).
Day 2 -
I awoke feeling the same.
In the afternoon Amir came to see me. I worked with him for a total of
5 and a half hours with breaks in-between to rest.
After the time with Amir that day my legs came out of paralysis (after
19 days), I sat up (without support) got wheel chaired to the bathroom.
5 minutes later I had dinner in the dining room. I ate my dinner with
no help at all. I felt great!!
That night I walked for the 1st time in 6 months on crutches to the
bathroom, which was down a corridor from the room we were staying in.
Day 3 -
Woke up and within 10 minutes got up and walked with crutches to the
other side of the room to the bay window overlooking the sea. Sat up
and had breakfast there (this was at 7.00 in the morning) as you can
After I walked to the bathroom
on crutches and had a shower (my 1st one in 6 months!) and got myself
In the afternoon of the second session with
Amir I went to the beach (my first trip outside in 6 months!!!) and
walked on my own. I was walking up sand dunes, throwing pebbles in the
water, laughing, joking, talking, just randomly walking around in the
fresh air saying over and over again I'm well!! I'm well!!! (The most
walking I'd done in 2 yrs!!!)
That night I went into the
village pub, sat in there for half an hour and had a drink with my mum
and dad, then took a drive and sat eating chips in the car for tea!
Back at the accomodation I went to bed, got to sleep within 4 minutes!
Day 4 -
I got up, had breakfast, made mum and dad a cup of tea, walked to the
bathroom down the corridor without crutches, had a shower and got
dressed, then packed all the suitcases to come home.
(Picture bellow: me walking down the steps from the accomodation, that
2 days earlier I had been carried up)
Mid morning travelled to Amir's house and had
last session for nearly 2 hours.
In the car going home, I sat bolt up right for the whole of the 4 hour
journey, and it didn't bother me at all!!
Came back, saw my sisters for a
while; I was being hyper bouncing around the kitchen! I had so much
Made myself something to eat and drink. Saw my boyfriend for 2 and a
half hours, sat up and stood up. Had a late meal at the table.
Went to bed and got to sleep within 4 minutes again!
hope that my story inspires those of you that can/want to learn to
overcome M.E. with Amir (especially those who are severely affected and
didn't think you could manage the journey! I managed 4 hours+ in the
back of a car lying down on a mattress, paralysed from the waist
So many people have been touched by my recovery and I have inspired
them to go and do the same as me and to then hear their recovery
stories has been heart warming.
When I told the doctor who did my medical at my place of work, I think
I nearly stopped his heart when I told him it's possible to get well
from ME - his last words to me were 'I believe in anything that works,
and your the living proof', which was really lovely to hear.
I still actually have the picture you got me to illustrate of a life I
love in my bedroom, needless to say I have achieved every single one of
the things I wanted to do and more besides.
I wanted to take the opportunity again to thank you for all you did for
me in 2005 without your tuition I would still be... well.... in the
in attending our Online Energy Excellence Course?
online course is designed to help you:
- Learn specific tools and
strategies to address root causes of fatigue and burnout.
- Make simple lifestyle
that support your recovery.
- Find your way back to a