I
was first diagnosed with ME when I was 28. I had just
bought my first flat, started a demanding new job and
had been racing around for years and pushed myself hard.
In the past I'd also had Epstein Barr/glandular fever,
which is a classic trigger. Then I picked up a bug and
soon after I was completely exhausted. I had only been
in my new job for a year but had to take a few weeks
off. Unfortunately, I only seemed to get worse with
excessive levels of tiredness, myalgia, and I became
very weak physically.
This time I took six months off and moved back home
with my parents as it was so difficult living alone.
I remember taking a few minutes walk, and having to
call my mother to pick me up as I was unable to make
it home. It was very frightening. Would I ever have
a 'proper' life again. What about relationships? My
future? It felt pretty depressing.
I saw a couple of specialists but they didn't have much
to offer apart from meditation. I also saw a GP/acupuncturist
who put me on a restrictive diet but I'm not convinced
it made much of a difference. I did receive advice on
pacing which I found useful. It was also reassuring
to talk to someone who understood. You can feel very
isolated and lonely with this illness.
After six months, I went back to work part time but
it was still a struggle. I seemed to have perked up
a bit but soon got worse even though I moved to be a
few minutes away from my job so I could get back easily
for rests. My employers were helpful in many ways but
didn't really understand ME. I looked OK (although when
I see photographs of myself looking tired and grey I
wonder how they could have thought that). I saw the
work GP who didn't believe in ME and was convinced that
I needed psychological help. He tested me for depression
but I knew that wasn't it.
Soon after I took another six months off and went home
again. One wonderful thing had happened - I met my husband
at a party (I needed to go out and have some drinks
however I felt afterwards) and he was lovely and understanding.
I returned to work again, part time, and had certainly
made improvements and was very careful about my lifestyle.
However it was a constant battle between me doing what
I felt able to do and them wanting me to do more. One
day I decided I'd had enough. I wasn't going to be able
to change their attitude but I could make the changes
myself. Nonetheless I found the adjustment hard. I'd
given up a regular salary, prestige, a high-profile
job to work at home without all the informal contact
you have with other people.
Some time later I was seeing an excellent acupuncturist
(who had ME in the past herself) and she urged me to
do the course. Clients of hers had found it amazing.
I had heard of it and even looked into it in the past
but have to admit that I was sceptical, and even annoyed
by the claims that were made. I decided it was time
to take the plunge and put most of my cynicism aside
and went ahead. One thing I knew for sure was that I
really wanted it to work and that I had spent far too
long living under the shadow of ME.
I hadn't expected to actually enjoy the course - hanging
out with a roomful of ME sufferers! But the surroundings
were beautiful, the course itself was interesting and
revelatory and so much of it made sense. I could at
last understand why I had been feeling the way I had
for so long. It was good, also, to hear what other people
had to say, much of which I recognised. I found it strangely
moving, especially to see the improvements other people
made during the course and hearing what they'd been
through. It was courageous of them to come along. I
put into practice everything we were taught and gradually
started to feel the benefits while I was there.
When I went back home I knew that ME was a thing of
the past and that is the case now. It's very liberating.
After I'd completed the course people commented on how
well I was looking even though they'd had no idea I'd
been on it. They thought I looked happier, better, and
I certainly felt lighter somehow.
I was also reassured because I knew I had the necessary
tools at my disposal so I could look to the future with
much more confidence. I started writing more, which
is something I really wanted to do and, with the inevitable
blips and dips that are part of life, I feel I've made
a huge improvement. My body feels much healthier. I
don't take it completely for granted, though, and want
to make sure that the life I lead isn't too hectic as
it just doesn't suit me - you have to know yourself
a bit. Anyway, I heartily recommend this course to others
and I now firmly believe that it can change your life
too.
- Diana |